Privacy & Contact Information

We will only use your information where we have a legal basis to do so and will always respect your rights. Unless we specify otherwise, we use your information, because we consider we have a legitimate interest to do so. Where we do rely on a legitimate interest to use your information, we will always ensure that this is done in a way so as not to be intrusive or cause distress, and that respects your rights. Other reasons may include using information because you have consented to us doing so, we have a legal obligation to do so or because we have to fulfil contractual obligations.Some examples of how we use your information can be found below. 

The personal information we collect from prostate cancer patients (and family members) and email subscribers may include some or all of the following:

• Your title, name, address and contact information (telephone number(s) and/or email address(es))
• Your date of birth
• Your gender and sexuality
• Your nationality and ethnicity
• Your background and family situation
• Photographs
• Medical information (see below: What about special category data?)
• Records of your communications with us
• Information gathered through surveys or forms you have filled out
• Your IP address(es) and related browsing information.

For specific projects and where stated, we may collect health information. 

Certain categories of personal information are recognised in law as sensitive, including health information and information regarding race, religious beliefs and political opinions (‘special category data’). Special category data of patients can sometimes assist us in our scientific research, and we only collect it when we have a legal basis to do so and we will only use it as specified below. 

We do not routinely collect such information about our email subscribers unless you have made that information publicly available (for example, where you have published your political opinions/affiliations). 

When you give it to us directly:

We collect personal information that you may provide to us including when you:

• agree to participate in a research project;
• complete a survey; 
• agree to be interviewed about your experiences for the purposes of informing our research strategy;
• confirm your subscription to receive our newsletter emails; or
• respond to any invitations included in those emails.

When you give it to us indirectly:

This may include data for which you have given consent to an other organisation to share for the purposes of research. We collect information about the services you use and how you use them in a number of ways, including:

• We may collect information when you visit our website, including through the use of cookies. See our cookies policy for more details.
• We may automatically collect information relating to what pages have been viewed and any information volunteered by you when your browse our website.
• We may automatically collect information about your equipment, browsing actions and patterns.
• We may also track if you are opening and engaging with the service emails we send you such as when you view and interact with our emails and content.

We will only process your information if we have a legal basis for doing so, including:

Where you have granted us consent, for example:

• Where any health data (or other special category data) is involved in our research, we rely on your explicit consent for processing that information. We will ask you to tick a box to confirm that you give your consent for us to collect this data. 
• To contact you if you subscribe to our mailing list with marketing emails, newsletters and updates, and/or information on our research activities

• To let you know about our programmes and any events that we may be hosting.

   

Where we have a legitimate interest, for example:

• To administer our internal operations, including the administration of activities involving our partners; or
• To improve our services to ensure that any content is presented to you in the most effective manner for you.

We also use the information you provide in an anonymised form for the following purposes:

• To carry out research projects
• To assist us in selecting new research projects
• To monitor and evaluate the impact of our programmes
• To refine and improve our services
• To produce reports such as our annual report or reports for donors
• To carry out work that falls within the overall mission of the organisation.

We may share your personal data with partner organisations that work with us to deliver a service you have signed up for or with partner organisations that are working with us to deliver a research project. This may include, but is not limited to, universities, research institutes, biotechnology companies, pharmaceutical companies, other charities and charitable organisations. When we do share your data with partner organisations they will not be able to identify you by name as we will never share your name, address, contact information or date of birth with these organisations.

Ancora.ai provide our clinical trial finder tool. If you choose to use our clinical trial finder and wish to create an account your first name (or alias) will be shared with ancora.ai (This link will take you to the clinical trial finder).   Your first name or alias will be used solely for the purpose of communication between the clinical trial finder tool (run by ancora.ai) and yourself. if you chose to save a search, bookmark trials, and/ or request to be connected to a trial your email address will be shared with ancora.ai. In these scenarios, the email address is used solely for the purpose of communication between ancora.ai and yourself. Please note you can request to have your information deleted from ancora.ai at any time.

We may also share your personal information with our service providers/data processors so that they can carry out work on our behalf. Whenever we engage a third party to act on our behalf, we ensure that the contract we enter into with them require them to comply with relevant data protection laws, to process your information only for the purposes we specify and to make sure they have the appropriate controls in place to protect the security of your information.

For our email subscribers, we share your personal information with our email distribution service provider that sends out and helps us tailor our emails, and we will not share it with any other third parties without your explicit consent.

Where we are under a legal or regulatory duty to do so, we may disclose your details to the police, regulatory bodies or legal advisors, and/or, where we consider this necessary, to protect the rights, property or safety of Prostate Cancer Research, its personnel, visitors, users or others.

We retain the personal information including contact information we collect on you for as long as we require it. We will also keep any health or special category data that we collect on your for as long as we require it. 

If you unsubscribe from our emails, we retain a minimal amount of data (name and email address) in case a request is received to re-subscribe, to track the consent and communication history of the individual, or to get in touch for administrative purposes.

We may change this Privacy Policy from time to time.  If we make any significant changes in the way we treat your personal information we will make this clear on the Prostate Cancer Research website, the infopool website or by contacting you directly.

Under the Data Protection Act 2018 you have the following rights:

• Information Right – the right to receive the information contained in this policy and our data collection forms about the way we process your personal data.
• Personal Data Access Right – the right to know that we are processing your personal data and, in most circumstances, to have a copy of the personal data of yours that we hold. You can also ask for certain other details such as what purpose we process your data for and how long we hold it.
• Personal Data Correction Right – You have the right to request that we correct inaccurate data or complete incomplete data that we hold on you.
• Personal Data Erasure Right – Known as the Right to be forgotten. In certain circumstances you may request that we erase your personal data held by us.
• Personal Data Restriction Right – You have the right to restrict the way we process your personal data in certain circumstances, for example if: you contest the accuracy of the data, if our processing is unlawful, to pursue legal claims, where we are relying on legitimate interests to process data.
• Data Processing Objection Right – You have the right to object to us processing your data for (i) direct marketing purposes (ii) scientific or historical research or statistical purposes and (iii) purposes of profiling related to direct marketing or based on our legitimate interests or on the performance of a task in the public interest.
• Data Portability Right – You have the right to receive a copy of certain personal data or to have it transferred to another organisation in some circumstances.

If at any point you withdraw your consent for us to use your data in our work you can email us at info@pcr.org.uk and state that you withdraw your consent for us to use your data. We will then endeavour to delete any personal information and health or special category data that we have on you that is identifiable to you. However, any of your data that has already been anonymised will remain with us and we will continue to use it as we will be unable to delete this anonymised data due to the fact that it has already been anonymised and mixed with other anonymised data so it would not be possible for us to find it and delete it.

If you have any complaints about how we handle your personal data, please contact us so we can resolve the issue, where possible. Read more about how to make a complaint. You also have the right to lodge a complaint about any use of your information with the Information Commissioners Office, (this link will open in a new external tab) the UK data protection regulator. Where you have a complaint about the way in which we have used your personal information in our fundraising, you can also complain to the Fundraising Regulator.

We take such measure as are appropriate to ensure the confidentiality, integrity and availability of systems and to protect your data in line with industry standards.