Steve's Story

Ethnicity
White British
Age
70-79
Work
Retired
Sexual Orientation
Straight
Geography
South West
Relationship status
Married/In a Civil Partnership

Radical Prostatectomy (Surgery)

Tips and advice for any bladder or bowel side effects of treatment

After the Robotic Surgery and the catheter had been removed, I had zero urine control. It felt like a running tap. I found this devastating and I became depressed, especially as I had religiously carried out Kegel exercises prior to and after my op. I also purchased a Kegel machine. Nothing seemed to help. However, time has slowly improved the situation. It is now three years post op and although I am much drier, it seems to have reached a plateau and on the odd occasion I find that for a few days I get wetter for no apparent reason. My bladder leaks more from mid afternoon until bedtime. I do not drink tea or coffee after midday but I drink more still water instead. I carry spare pads with me and plan journeys so I know where I can access toilets. I always carry an URGENT Prostate Cancer card, so that staff in restaurants etc and non public toilets may offer help when I cannot find a public toilet. I realise that I will always leak more when I’m am being active or doing manual work, however, I do not restrict my activities as I want to stay fit and keep myself busy.

Tips and advice for any sexual side effects of treatment

If I get aroused I leak urine, therefore I do not feel sexy.

How this treatment impacted my life the most

Incontinence

If I had to do it all over again, would I choose the same treatment?

Not sure

Why did I give this answer?

The incontinence is the worst side effect of my treatment and if the cancer had been eradicated I would probably be feeling more positive. However, my cancer is returning, therefore I am questioning whether I should have chosen a different treatment plan which would not have caused incontinence. I don’t seem to have gained anything but feel that I have lost a lot.

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