Andy's Story

Ethnicity
White British
Age
60-69
Work
Office
Sexual Orientation
Straight
Geography
Greater London
Relationship status
Married/In a Civil Partnership

Radical Prostatectomy (Surgery)

Tips and advice for any bladder or bowel side effects of treatment

I went against the view of the hospital and bought some incontinence bags and sheaths, similar to those supplied by the hospital in the first place. Yes it cost me money but worth every penny. I found these gave me confidence when going out and soon I was travelling around the country. As I did the kegel exercises to control my flow, I found that I needed the sheath and bags less and instead bought incontinence pants or ordinary underwear and incontinence pads. These I have continued with. I don't know what they did in the operation but if I spread my right leg too far any pee in the system, comes out. It is like the bladder is attached not only to my penis but also to my leg. So sometimes I will wear a pad until I get to where I am going and then ditch the pad, in a compostible bag, and feel clean around others.

Tips and advice for any sexual side effects of treatment

Whilst I crave and enjoy the love, hugs and touch of a woman, I no longer feel sexually attractive to them. I have accepted that this part of my life is gone.

Tips and advice for any physical side effects of treatment

Walking has dealt with a lot of my swelling and whilst the continouous treatment means my hair is receding a little quicker, I can live with that too. I get tired after about 3pm, so if I am away or at home, I will catnap or simply sleep for a couple of hours. If I am at work it causes me a problem and so retirement is now being explored. Properly eating at regular times does make a difference as does a good diet. There is no reason you cannot enjoy your life so long as you things in moderation.

Tips and advice for any mental and emotional side effects of treatment

Memory and skin problems - A direct side effect of some of the treatments. As a result of toxicology, I am no longer allowed one of the effective drugs. I have been recommended a couple of new treatments and the toxicology is there too. So i don't see the point. I would rather deal with what I know, than take something that creates the problem all over again, only to be told you can't have that either.

How this treatment impacted my life the most

So the only bit of the whole procedure that has left me annoyed, is that I went into hospital with a 36/38 inch waist and came out with a 44/46 inch waist. No the covid restictions didn't help but there was no effort made to actually tuck the stomach back in to place properly. Perhaps this is because it was done by robot or that I went through the NHS instead of private. I can live with everything else, and am doing so quite successfully, but the physical deformity really annoys me. And there is no offer to sort this out either. There is one other thing that annoys me. Every now and again my oncologist and I discuss the new treatments but they never come my way. He is not allowed to give them, because my health resource will not pay for them. It should be my choice not theirs.

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Of course I would, I would potentially have been dead now. Why? My friend went for a walk and came back to find he had been misdiagnosed by his doctors and it was too late. 7 days later he was dead. His death and my attendence at his funeral saved my life. It is now metatastic and my life gets shorter daily but, I owe it to him to keep on fighting.

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