Anxiety about getting too old for surgery whilst on surveillance
Yes
I did a lot of research about treatments and their side-effects and I wish I had spoken to more people in my position at the time.
Start doing pelvic floor exercises as soon as you get diagnosed and get them 'banked' as my consultant says. In other words, once you have done them, the good they have done is compounded and cannot be taken away. Start thinking about 'rehabilitating your penis' (the surgeon's turn of phrase), preferably before surgery. The little blue pills they prescribe will only give you nasal congestion and headaches. You're pretty much on your own here guys, as you are the expert on you and your sexuality.
Get your muscles moving as soon and as much as you can
I remember mostly waiting for something to go drastically wrong and only recently felt like I may be a cancer survivor
Yes
Having done it, I am absolutely sure this was the right treatment option for me, although at the time I did spend ages and many sleepless nights tied up in knots about about whether I was doing the best thing. Apparently, this 'treatment anxiety' is very common, yet so little seems to be done to address it.
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