Steve's Story

Ethnicity
White British
Age
70-79
Work
Retired
Sexual Orientation
Straight
Geography
East Midlands
Relationship status
Married/In a Civil Partnership

Radiotherapy

Tips and advice for any bladder or bowel side effects of treatment

I take tamsulosin tablets ( one per day) which provides a better stream and I feel that I can empty my bladder. I can pee without the tablets now however I have very poor flow and never feel that my bladder is empty. I'm always interested in the side effects of medication and didn't want to be on this one permanently; I've stopped once and started again.

Tips and advice for any sexual side effects of treatment

This was the most disappointing after effect for me. Although my ability to maintain a usable erection was waning in the years prior to treatment, it's now impossible to have penetrative sex. My wife and I are aware of all of the alternatives so I'm able to give but not receive. My concern was predominantly for my wife so I guess I shouldn't complain. Feeling like a eunuch makes me depressed however. Be inventive with your partner and share her/his feelings.

Tips and advice for any physical side effects of treatment

It's challenging to have a spare tyre around my middle which I'm struggling to reduce. I'd suggest ensuring a decent diet and regular exercise.

Tips and advice for any mental and emotional side effects of treatment

My GP has been brilliantly supportive, I'd suggest an honest conversation with yours and also allow yourself to be cheesed off with your situation. It matters not that there are thousands of us in a similar situation, what matters is what's affecting you. Share your story with those you love and don't bottle any anxiety up.

How this treatment impacted my life the most

Limited ability to function sexually is depressing and my interest is returning which makes it more of an issue. I don't feel like I did which prompts me to question my masculinity. It's depressing to think that I'll be like this forever and I resent any patronising observation that it's something to accept as I'm getting older! I no longer feel like me.

If I had to do it all over again, would I choose the same treatment?

Not sure

Why did I give this answer?

I had conversations regarding watchful waiting however any decision had to be mine and my wifes'. I asked my wife which course of treatment would reassure her the most and we agreed to external beam and hormone treatment. I looked at the potential side effects but didn't anticipate getting a full set, so hindsight being 20/20 I would opt for watchful waiting.

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